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BLOGS: Living with VHL in a Canadian context

2025

Sept

• VHL Canada ethnicity country gender

• VHL Hospital for Sick Kids Toronto Family

• News VHL BC

• Belzutifan funded by most provinces

• VHL Drug Saskatchewan story update

Aug

• VH-Wellness "be the hero in your own story"

• VH-WELLNESS and social media

• National provincial health system patient perspectives

• Facebook Page of Canadian VHL Alliance

• Study rare disease patients caregivers in Canada

• Update Aug. 10/25

• CMHA BC mental health mental Illness terms

• Mental Health Tips CMHA

• PUNT NUTS strategy Montreal Ottawa Sault Ste. Marie

• Canadians rare diseases hurdles

July

• Tips from Centre for studies on human stress/Centre de recherche IUSMM

• Other countries Belzutifan (Welireg) VHL tumours

• More VHL research clinical Canada

• VHL Database Toronto

• More Cities Researchers Events Awareness

• National Local News Families Researchers Clinicians

Jan-June

• Update June 2025

• My newest "normal"

• Canada Belzutifan Access Acronyms 2023-present

• He’s been on Belzutifan for 3 months

• VHL Sister National Institutes of Health US

• VHL Canada International Belzutifan

• Manitoba VHL Belzutifan News

• Support and blog groups members Jan '25

Blogs 2024