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Von Hippel-Lindau (VHL) Syndrome

“is one of more than 7,000 known inherited rare disorders. It is a disease caused by a mutation in the VHL gene - resulting in both benign tumors and malignant tumors More

1/36,000 or 900+ people have VHL in Canada

VHL Canada is a proactive peer support network for VHL patients and their families living in Canada. We tend to focus on discussions and topics on ‘living with VHL in Canada’, or in your province or local context. Although we are small... More

Peer Support includes online group/individual and blogs/group email

VHL Awareness: Links • Affiliations Outreach• Fundraising