ONLINE GROUP CHAT: Every Wednesday, 7:30-9:30pm EST (Open/Drop-in)
Audio, Email and Video contact is also available
Information and webinars on psychosocial topics like emotional health, wellness, coping, and stress management
if you prefer INDIVIDUAL ONE-TO-ONE SUPPORT
Audio, Email and Video contact is also available
Information and webinars on psychosocial topics like emotional health, wellness, coping, and stress management
if you prefer INDIVIDUAL ONE-TO-ONE SUPPORT
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VHL is a rare genetic disease and cancer syndrome that results in tumors growing in 10 areas of the body. VHL is caused by a mutation in the VHL gene, which is supposed to suppress tumours. VHL, once diagnosed, requires lifelong screenings to provide early identification and diagnosis of non-cancerous and cancerous tumors, as well as intervention when necessary, which usually comes in the form of multiple surgeries.
Info sheet 2017
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Rare Disease Information and Resource Centre
Also learn and connect more at:
Since 1993, VHL Alliance has been improving, inspiring, and connecting lives that have been affected by VHL all over the world. "The preeminent resource and clearing house of patients, caregivers, researchers and the medical community”. VHLA is a charity in the US – IRS Code 501(c)(3)
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