We are dedicated to improve and strengthen the lives of those affected by von Hippel-Lindau Syndrome (VHL) in Canada through Peer Support: the emotional, informational, and practical support from and for people with lived experiences, to cultivate mutual empowerment. Peers include patients and their family members

Check-out our BLOG post every week on topics like coping and experiences, etc.

Info on participating in the "Walk for VHL” at Scotiabank Toronto Waterfront Marathon (STWM) on October 21, 2018...

Also see testimonials from last year's fundraisers ...

VHL is an inherited disorder characterized by the abnormal growth of both benign and cancerous tumours and cysts in many parts of the body...

Find VHL Canada's patient support listed here:
Canadian Cancer Society ● Canadian Organization of Rare Disorders ● Canadian Directory of Genetic Support Groups ● Ontario Community and Social Services ● ORPHANET International Database (CIHR)