VHL or von Hippel-Lindau Syndrome is a rare genetic disease characterized by the growth of both benign and cancerous tumours in several parts of the body. For 1000 or 1/36,000 in Canada, it is often a life-long battle
Peer Experiences
Social-Emotional Support
Information
Blog
VHL Awareness and Fundraisers
VHL Canada is a small registered charitable organization* started by a patient in 2016 that facilitates peer support with patients and their family members coping with VHL in Canada
*  BN: 800804676 RR0001
canada.ca