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Scotiabank Charity Challenge*
5K Walk for VHL October 22, 2017 Here's my personal awareness page (Henry Seo) However, if you want to join us on "Team VHL Canada" on the day, REGISTER by July 31.They get sold out in advance! Contact Henry for discount PIN code and steps: Email OR cellphone. |
ONLINE GROUP CHAT: Every Wednesday, 7:30-9:30pm EST (Open/Drop-in)
Audio, Email and Video contact is also available Information and webinars on psychosocial topics like emotional health, wellness, coping, and stress management if you prefer INDIVIDUAL ONE-TO-ONE SUPPORT |
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VHL is a rare genetic disease and cancer syndrome that results in tumors growing in 10 areas of the body. VHL is caused by a mutation in the VHL gene, which is supposed to suppress tumours. VHL, once diagnosed, requires lifelong screenings to provide early identification and diagnosis of non-cancerous and cancerous tumors, as well as intervention when necessary, which usually comes in the form of multiple surgeries...
Info sheet 2017
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Find our charity's Group and Individual services here:
Rare Disease Information and Resource Centre
Affiliate Membership
Also learn more about the disease and connect more at: Since 1993, VHL Alliance has been improving, inspiring, and connecting lives that have been affected by VHL all over the world. "The preeminent resource and clearing house of patients, caregivers, researchers and the medical community”. VHLA is a charity in the US – IRS Code 501(c)(3)
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