We are dedicated to improve and strengthen the lives of those affected by von Hippel-Lindau Syndrome (VHL) in Canada
We use a Peer Support model: the emotional, informational, and practical support from and for people with lived experiences, to cultivate mutual empowerment. Peers include patients and their family members
We use a Peer Support model: the emotional, informational, and practical support from and for people with lived experiences, to cultivate mutual empowerment. Peers include patients and their family members
on biopsychosocial-related topics like coping, experiences, etc.
VHL is an inherited disorder characterized by the abnormal growth of both benign and cancerous tumours and cysts in many parts of the body...
Genetic and Rare Diseases Information Center (GARD)
Genetic and Rare Diseases Information Center (GARD)
