I was diagnosed with VHL at a young age. I had a very traumatic experience with my first tumor on my pancreas when I was 12... Corynn

 I had my first tumour in spine about 17 years ago and last Jan I had a tumor in my cerebellum. I don’t want to make this post long but... Brandi

I have VHL and have had 5 brain tumour and 3 kidney cancer operations from age 15-50. In 2013, I started volunteering for the VHL cause. In 2016, I started this non-profit to address a gap in Canada... Henry

Here is my VHL tattoo. VHL knot in the middle of the world and the people coming out to support each other ... M, Newfoundland

... Big changes for me in 5 years... But I am lucky I have the most incredible husband in the world, he and my wild little boy make my life full and happy even while I’m fighting this battle. I’ve never actually met another VHL warrior (patient) so it’s lovely to “meet” you all!...  Erin, Alberta

Hi everyone. I’m 38 years old and live in Ottawa. Sister and I got the gene from our father, my 7 year old son carries as well...Melanie, Ontario

This is wonderful time have a group in Canada. My son and step daughter, 25, both have VHL. My son is 10 so I've joined on his behalf. N, Alberta

I'm a VHL patient and so is my mom. My wife is from Toronto and we want to eventually relocate there. [By joining this group, I'd like] Knowledge of checkup procedures and experience. exchange. S, Europe