Patient Family Quotes/Stories...
Here's an option to make connections or friends with others just like you. Living with and loving someone with VHL can also be difficult.
You're not alone. Sometimes you'll experience something your existing support network isn’t familiar with. The knowledge that we're not alone helps us cope with feeling overwhelmed, blamed, shamed, discouraged, etc. Get and give SUPPORT or PEER SUPPORT
Here's an option to make connections or friends with others just like you. Living with and loving someone with VHL can also be difficult.
You're not alone. Sometimes you'll experience something your existing support network isn’t familiar with. The knowledge that we're not alone helps us cope with feeling overwhelmed, blamed, shamed, discouraged, etc. Get and give SUPPORT or PEER SUPPORT
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I was diagnosed with VHL at a young age. I had a very traumatic experience with my first tumor on my pancreas when I was 12... Corynn |
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I had my first tumour in spine about 17 years ago and last Jan I had a tumor in my cerebellum. I don’t want to make this post long but... Brandi |
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I have VHL and have had 5 brain tumour and 3 kidney cancer operations from age 15-48. In 2013, I started volunteering for the VHL cause. In 2016, I started this non-profit to address a gap in Canada... Henry |