Find our charity's Group and Individual services here:
- London Health Sciences Centre - Canadian Directory of Genetic Support Groups
- Rare Disease Information and Resource Centre – Bilingual Helpline and Database
- Information sur une maladie rare, des ressources ou du soutien
- ORPHANET Database - Canada (Canadian Institutes of Health Research) and Europe
- Affliate Members Database - Canadian Organization of Rare Disorders
- 211 Helpline and Online Database of Ontario's Community and Social Services
- Canadian Cancer Society
Contact an expert with questions:
Bailey Gallinger, MSc, CGC
Genetic Counsellor, Cancer Genetics Program
The Hospital for Sick Children
Phone: 416-813-8597; Internal: 208597
Evidence for genetic anticipation in von Hippel-Lindau syndrome (2018)
VHL Alliance (vhl.org)
"VHLA empowers patients and their health care teams to manage the health of the patients. Central to patient care is the VHL Handbook: What You Need to Know About VHL, written and published by VHLA [also sign up for free download]. The Handbook, also available in a children’s version, is the only document in patient-accessible language that offers tips on diagnosis and treatment while providing constructive ways of living with VHL."
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PubMed comprises more than 25 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.
Kids Help Phone - is a Canadian and world leader known for our expertise and continuous innovation as Canada’s only 24/7 counselling and information service for young people... Since 1989, our trained, professional counsellors have been listening to kids.
Wellspring is a network of community-based support centres offering programs and services that meet the emotional, social, practical and restorative needs of people living with cancer and those who care for them. Wellspring programs are offered free of charge.
Join and access programs for cancer patients (including VHL) like ones on meditation, other mind-body activities, nutrition and cooking, money matters (Alberta, GTA, Southern Ontario)