211 Helpline and Online Database of Ontario's Community and Social Services
Genetic and Rare Diseases Information Centre (GARD)
Von Hippel-Lindau (VHL) disease is an inherited disorder characterized by the abnormal growth of both benign and cancerous tumors and cysts in many parts of the body...
The pre-eminent resource for patients, caregivers, researchers, and the medical community... Central to patient care is the VHL Handbook: What You Need to Know About VHL, written and published by VHLA [also sign up for free download]
A 501(c)(3) non-profit
1208 VFW Parkway, Suite 303
Boston, MA, USA, 02132
Contact an expert with questions:
Bailey Gallinger, MSc, CGC
Genetic Counsellor, Cancer Genetics Program
The Hospital for Sick Children
Phone: 416-813-8597; Internal: 208597
Evidence for genetic anticipation in von Hippel-Lindau syndrome (2018)
PubMed comprises more than 25 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.
Kids Help Phone - is a Canadian and world leader known for our expertise and continuous innovation as Canada’s only 24/7 counselling and information service for young people... Since 1989, our trained, professional counsellors have been listening to kids.
Wellspring is a network of community-based support centres offering programs and services that meet the emotional, social, practical and restorative needs of people living with cancer and those who care for them. Wellspring programs are offered free of charge.
Join and access programs for cancer patients (including VHL) like ones on meditation, other mind-body activities, nutrition and cooking, money matters (Alberta, GTA, Southern Ontario)