Imagine living your life, knowing that benign and cancerous tumours will be inevitable and may cause dangerous problems, but not knowing when or where. VHL is a rare genetic disease and life-long battle for patients and their family members.
Your gift will help us provide vital support. For example:
- $10 per month helps us with website and email domain and hosting costs
- $20 per month helps us cover web-statistics and office software
- $50 (can double in value as a gift card) to help a family with the burden associated with many medical appointments and treatments (parking, travel, prosthetic, groceries, etc)
- $100 per month covers 1 year of the support program by internet or phone
See full description on What is support? page
PSV is a permanent volunteer position responsible for all the above psychosocial-emotional (group and individual) and informational support for peers (patients and family in Canada).
PSV devotes a minimum of 4 hours per month or 48 hours per year. We also have Volunteers for administrative, board of directors, and other needs (e.g. fundraising). Total: Minimum 5 hours a month or 60 hours per year
We are cost-efficient. We are volunteer-run. We pay no salaries, just out-of-pocket expenses.
PRACTICAL - In the future we may consider new projects that supports VHL patients in Canada
We have Registered Charity status with Canada Revenue Agency (CRA) Charities Directorate. We must provide appropriate (and approved) activities described above for our VHL community in Canada in order to keep our privileges under the Income Tax Act. BN: 800804676 RR0001
Past financial information on Government of Canada, CRA, Charities Directorate site
- Group Online Chat
- Individual
- Outreach and awareness raising
- Informational - on living well or coping with VHL
- General Inquiries
PSV is a permanent volunteer position responsible for all the above psychosocial-emotional (group and individual) and informational support for peers (patients and family in Canada).
PSV devotes a minimum of 4 hours per month or 48 hours per year. We also have Volunteers for administrative, board of directors, and other needs (e.g. fundraising). Total: Minimum 5 hours a month or 60 hours per year
We are cost-efficient. We are volunteer-run. We pay no salaries, just out-of-pocket expenses.
PRACTICAL - In the future we may consider new projects that supports VHL patients in Canada
We have Registered Charity status with Canada Revenue Agency (CRA) Charities Directorate. We must provide appropriate (and approved) activities described above for our VHL community in Canada in order to keep our privileges under the Income Tax Act. BN: 800804676 RR0001
Past financial information on Government of Canada, CRA, Charities Directorate site
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You will receive an official tax receipt
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(Temporary) Mail:
618 Gladstone Ave. Toronto, ON M6H 3J4 |
Other ways...
Create free personal/birthday fundraisers on: (automatic tax receipt issued)
OR
Shop and Share.ca. Shop online and we get a small percentage at when you sign up and use this site
