As I sit here feeling very sore from my surgery last week... I'm reflecting on some ideas that have helped me through this recent storm
"Developing resilience is a personal journey… An approach to building resilience that works for one person might not work for another. People use varying strategies…" APA
"There are many factors that affect a person’s health. Some things, like genes or age, cannot be controlled. Many things, like sleep, nutrition, and exercise can be controlled. A healthy lifestyle will help improve your overall health and well-being... It is important to live a healthy lifestyle, but being healthy means different things for different people…" vhl.org
"It’s hard sometimes. I try to exercise, see family and friends. I try to constantly remind myself how far I have come, how strong I am. I have great family/ friends. I tell myself I’m still walking and talking. Walking may be hard and slow at times but I’m doing it. Lol" K
"... I am blind. So I realized that I was focusing on my breathing and keeping myself calm and centered with the chaos of all of the 200+ children and families swirling around me. It might have been a very stressful and anxiety-inducing situation. Finding my center and focusing on my breathing helps me keep calm. I find I use yoga all the time. Especially before procedures …"
"My husband is on CPP disability (BC). He was denied the first time. [But] We got help through community services, they were amazing and free. We should have gone there first but didn't know…"
"Yes it takes its toll but I don’t let it bother me anymore nothing I can do about it just live life and enjoy my new grand-daughter on the way ... so busy helping new mom to be"
“In addition to the careful preparation my doctors and I went through… I trained myself for this even as if I were training for a sports event. I made sure my body was healthy and strong… and that my mind was strong as well..."
"I participate in the VHL [Alliance’s] Patient/Caregiver discussion call… I met a new friend through these calls… I decided that I would like to meet and visit her in person. After all, from our conversations, it always seems like we have the same outlook on life and VHL… What a day we had! We talked nonstop... "
"When I go to the hospital with [my son], I try to make it like a journée privilège. We bring a lunch and make a picnic with some food that he likes. I take time with him and we play together with special toys that we never [usually] play or we read new books... Yes I try to make a special day... He feels lucky to be alone with mom"
"Honestly tests don't bother me that much! I'm only really sensitive about my eye appointments… I usually go to all of my tests alone but family comes with me for results. Family is a huge thing with me for dealing with stress… Talking about any worries with them relieves my stress for sure. Maybe it ls just sharing some of my struggles takes the wake off. I also talk to my dogs haha it weird but you know they will always listen! I also love the gym…"
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