Hi everyone. I’m 38 years old and live in Ottawa. Sister and I got the gene from our father, my 7 year old son carries as well...
This is wonderful time to have a group in Canada. My son and step daughter, 25, both have VHL. My son is 10 so I've joined on his behalf
(2015) I had my first tumour in spine about 17 years ago and last Jan I had a tumor in my cerebellum. I don’t want to make this post long but my mom and her mom and sister also were clinically diagnosed with VHL: my mother brain tumour and tumour in eyes. Although none of these ladies are with us anymore VHL was just a word to us a disease that at the time only females got... My 19 year old and my two year old boy have VHL my other five children do not I lost a child also and not sure if ...