What is a panic attack? It's "a sudden rush of intense fear or discomfort, which reaches a peak within 10 minutes, and includes at least 4 of the following physical sensations or thoughts…”
“Panic attacks” are common with the VHL participants according to the VHL Alliance’s MyVHL survey. Also see VHLA Patient Handbook - Emotional Health.
For example, in recent years, I had at least a few medium panic attacks when I read suggestions or answers to my questions on a VHL-specific online support site. In any case, I thought that some self-help fact sheets would be a good start to learn more about this anxiety/panic (and depression) stuff. Then you can ask or discuss any concerns with your professional- clinical-hospital healthcare team if you want.
Strategies for Panic Attacks (and panic disorder)
How friends and family can help with anxiety (and depression)
How to deal with Anxiety
Dealing with depression
(These sheets may not refer specifically to VHL, but I have found them to be very relevant and useful for my own VHL situation and I have used some of these resources for my work)
Email me with any questions or feedback.