Leith, a grade six French Immersion student at John Ross Junior Public School, wrote a letter, about his awesome project, to the Canadian Organization for Rare Disorders (CORD)...
Link to original post and Facebook Page
To whom it may concern,
I was assigned a project to teach my class about a charity that touched my heart and was important to me. I chose [CORD] because my mom... has a rare disorder called aHus and I do not want anyone to suffer like my mom did. For my lesson I talked about different types of rare disorders such as aHus, hemophilia, Albinism, and Huntington's. I also did an activity that was a game of jepordy all about [CORD]. Thank you for inspiring me and keep doing what you're doing.
Leona’s VHL Story, Calgary, Alberta
“… it takes an emotional toll on all involved”
Video Link from VHL Alliance 10 minutes
A Visit to Remember, Ontario
“My name is Connie H. and I’m a von Hippel-Lindau Warrior”
Blog Post Link from VHL Alliance
Henry, VHL patient and volunteer, Toronto, Ontario
Annual Holiday Fundraiser for VHL:
2016 Article Link
2015 Article Link
2014 Article Link