Since I've had lots of VHL treatment between age 15 and 49, here's further comments and input on the factors related to "resilience" and coping...
I continue to find support with psychosocial resources (talking, financial, medication). Over the years, most of my contact with professional mental health people has been brief with trusted colleagues, or actual community-based/private helpers.
Beyond family members and friends, Self-help and support groups, books, and online resources may be sufficient. At times, however, an individual might consider at least 1-3 meetings with a professional in-hospital (or private) help.
Here's another excerpt from APA (American Psychological Association) research and tips that support my personal experience.
“A combination of factors contributes to resilience. Many studies show that the primary factor in resilience is having caring and supportive relationships within and outside the family…”
Let's hear from everyone on this issue!
This is an article that I like re-reading because it reminds me to relax and feel like a VHL warrior (or ambassador). I also think it can apply to different people's situations because it uses principles that are research-based in psychological and social sciences and inspiring imagery. However, it's just offered as "what has worked for me" (peer info support).To help summarize several of the main points in this brochure, resilience is compared to taking a raft trip down a river, “it helps to have knowledge about it and past experience in dealing with it. Your journey should be guided by a plan, a strategy that you consider likely to work well for you.
Perseverance and trust in your ability to work your way around boulders and other obstacles are important. You can gain courage and insight by successfully navigating your way through white water. Trusted companions who accompany you on the journey can be especially helpful for dealing with rapids, upstream currents and other difficult stretches of the river…”
The Road to Resilience - APA
VHL Awareness in Canada/VHL Canada Website Numbers
1 year totals (May 7, 2018 to May 7, 2019)
Page views: 2,322
Unique visits: 990
First time visits: 737
Returning visits: 253
Average daily Page views 6.3
Average daily Unique visits: 2.7
Average daily First time visits: 2.0
Average daily Returning visits: 0.7
Last 6 months (see charts for details)
Find us here
Good to know? What do you think?